Friday, December 16, 2016

Bunny band-aids and shot doctors

After my husband kindly defrosted the van doors last Wednesday morning, he left for work and I set off for Bellevue with my 3 tiny humans and approximately 98% of our house in tow (mostly in the form of toys and snacks). We were headed to another peanut Oral Immunotherapy appointment, this one lasting five and a half hours. We began with the dose Emma had been at for the last week (.06g of crushed peanut) and sailed through four or five doses throughout the course of the day. I texted my husband at one point with a celebratory, "3 doses away from a whole peanut!"

A WHOLE PEANUT.

Unbelievable.

We finished the last dose of .30g of crushed peanut and she began complaining of a stomach ache. I didn't think too much of it, hoping it would subside quickly. It continued and then she developed a dry cough. She has that occasionally so I wasn't too alarmed. When her breathing became increasingly wheezy however I knew she was officially reacting to the dose. The nurses came calmly and said they'd need to use some epinephrine. I couldn't quite wrap my brain around what was happening because I didn't know what this would look like, I only flashed back to conversations with my kids in the van on the way to the doctor when my three year old son wanted to be CERTAIN that this doctor was not a "shot" doctor.

"No shots today buddy, don't worry."

Fast forward to three nurses plus myself restraining my crying 5 year old on the floor to get a small needle of epinephrine inserted into her arm.

The good news is that the process was complete in a matter of seconds, the staff was prepared and handled everything so well, and the reaction ceased quickly. Emma was given a makeshift bunny band-aid by our nurse Shannon, which she thinks is the coolest thing ever. She refuses to take it off even two days later (this will only become problematic when our quarterly bath time rolls around again).




Emma was up and playing with Ben soon after as if nothing had happened. And Ben appeared to not be too terribly scarred for life by it all (he's more concerned with monsters and some creeper named Santa Claus coming into his house). They kept us for a while for observation and sent us home with a reduced dose for the week. We're two days into dosing at home and aside from some stress dreams of me having to epi my daughter, dosing has gone beautifully. SO thankful!

I am hopeful for what's ahead and amazed every day when I look down into this cup and have hope that my daughter can live a life without fear of what a simple bite of food might mean for her.

We're coming for you Reeses Peanut Butter Cups.



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